I started getting suspicious a while ago that our medical symptoms were getting to be a lot alike. Recently I had to take her to the ER, where they did some bloodwork, looked at her, and recommended a local pediatrician. They said to have her tested for lupus. At almost exactly the same time, my neurologist told me he suspected lupus in me and did labs. Both our tests our back. Both of them are positive. Her ANA is 1:160, mine is 1:360. (they're supposed to be negative, and anything over 80, from what I understand, is really really bad) Other tests are backing it up. They're testing me for leukemia now, although Anna was already tested when she was younger and she was fine, so I'm not too concerned about that. She's been referred to a pediatric rheumatologist. I've been referred to a regular one, but won't go until she's seen first. The problem is that even though they put her as top priority, there are just no fast openings. I'm extremely concerned for Anna. A few years ago when we lived in Oregon, she started having her hands turn blue off and on. We figured it was a heart thing (she was born with a heart issue) and her pediatrician there basically blew it off. It's gradually become worse, and recently became VERY bad. They're now constantly mottled, and now they turn blackish and her feet are now involved. I'm worried about the tissue damage, and that she'll be losing fingers and toes if they don't get her in. Her tests also seem to indicate some kidney damage. I knew she had "crystals" formed when she was an infant, but was under the impression that it was a common thing in newborns and would go away. The poor kid doesn't KNOW what normal is as she's had issues prior to birth, so doesn't know to tell me half the things that are going on! I don't know what to do. This needs prayer. We have health insurance (TriCare Prime) but it doesn't seem to make a difference...we were told there's only one pediatric rheumatologist in the state, and that he's very booked. So even putting her at high priority, we still don't have an appointment yet. Prayer, advice, anything is appreciated. I'm just shocked that a kid can have such a serious issue in this country and not get care. With me being in the same boat healthwise, the stress of not being able to get her care is exacerbating my own issues. It's an insane, vicious thing.