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Featured Ava-Rose back operation

Discussion in 'Prayer Requests & Praise' started by Covenanter, Apr 24, 2019.

  1. Covenanter

    Covenanter Well-Known Member
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    My granddaughter 6 y-o Ava-Rose suffers from spine curvature with an increasing degree, up to 86°. Today she will have an op to insert magnetic rods into her back to try to correct this.
    Little treasure also suffers from epilepsy & has 3 powerful drugs as well as a ketogenic diet to control the fits. The drugs affect her behaviour & appetite, & she has a permanent nose tube into the stomach for drugs, food & drink.
    Please include parents Jonathan & Zoe in your prayer.
     
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  2. tyndale1946

    tyndale1946 Well-Known Member
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    I will include your precious granddaughter Ava-Rose and her parents and your family in my prayers... Thanks for letting us know Ian... May God comfort and care for your family in your time of need... God Bless... Brother Glen:)
     
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  3. Reformed

    Reformed Well-Known Member
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    I just prayed.
     
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  4. Covenanter

    Covenanter Well-Known Member
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    From Mum Zoe -
    Quick update......Ava-Rose's surgeons have just come into the ward, Ava-Rose has good bones and has very good fixture on her bones, they are very pleased all went well, she is just starting to wake up so we haven't seen her yet...she has a special jacket encase she has siezures to protect her bones and any chance of ripping apart the work they have done.....xx
     
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  5. kyredneck

    kyredneck Well-Known Member
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    Lord please help that brave little girl.
     
  6. Covenanter

    Covenanter Well-Known Member
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    Still dozy & puzzled - this isn't like the previous hospital visits where she enjoyed the play areas. There's a lot of future living to be worked out with the rods in her back. How active can she be?
    The jacket doesn't look too restricting but she's still in bed of course.
     
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  7. Covenanter

    Covenanter Well-Known Member
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    Making progress - sitting out & walking - cooperating with physiotherapy.
    But she has had a fit, & been sick on the jacket - which is a plaster cast.
    They hope to be home next week.
    THanks for prayers.
     
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  8. Covenanter

    Covenanter Well-Known Member
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    On a lighter note -
    Two of Ava-Rose's cousins, Michael (6, same age) and Alexandra 3 1/2, came to play with Ava & sister Jessica (4.) They get on extremely well.

    Alexandra enjoyed pushing the older children on the swings - no problem as it swung back. A day or 2 later she phoned us (with Daddy's help) & kept us entertained for about 20 minutes - "I'm a chatterbox." She sang us 2 nursery rhymes.
    This morning Daddy said she'd been naughty - she was sitting under the table eating a Cornetto she'd taken out of the freezer :)

    It's wonderful to have family support in this situation. Zoe & Jessica are staying with Jon's brother Jeff a few miles from the hospital.
     
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  9. Rob_BW

    Rob_BW Well-Known Member
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    Lol, I had to Google Cornetto. Haven't seen that brand here, but looks analogous to a Nestle Lil' Drumstick.
    Praying for you and yours, brother .
     
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  10. Covenanter

    Covenanter Well-Known Member
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    Cornetto is a icecream cone lined with chocolate & filled with icecream.

    Jon has seen the post-op x-rays. Ava has 10 bolts holding two metal rods to her spine. It looks much straighter.
     
  11. Covenanter

    Covenanter Well-Known Member
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    She's coming home today, praise our Lord.
    Still a long healing process - and growing which will mean lengthening the rods magnetically.
     
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  12. Covenanter

    Covenanter Well-Known Member
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    With her this morning - her cheerful self but she needs watching & can't be allowed to walk alone - though she can. Making good progress though still under pain killers. And, of course, the epilepsy drugs. We enjoyed a cuddle.
     
    #12 Covenanter, May 2, 2019
    Last edited: May 2, 2019
  13. Covenanter

    Covenanter Well-Known Member
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    [​IMG]

    The ward had eggs to incubate so they could introduce them to the patients.
     
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  14. tyndale1946

    tyndale1946 Well-Known Member
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    You are a good grandfather Ian and thank you for showing us your granddaughter Ava-Rose, your precious bundle of joy... God continue to bless your family is my prayer... Brother Glen:)
     
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  15. Reynolds

    Reynolds Well-Known Member
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    She will be in my prayers.
     
  16. Reynolds

    Reynolds Well-Known Member
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    My boys love chicks. I just wish they loved taking care of the chickens.
     
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  17. Covenanter

    Covenanter Well-Known Member
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    Thanks for continuing prayer. Sorry to be a long time updating. Ava is making progress but it will be a long time - years - before it all works out. She's still wearing the plaster jacket, still having a few fits daily, still not eating properly - and losing weight.

    Also because of the epilepsy drugs, her sleeping is very erratic, which is exhausting for parents Jon & Zoe.
     
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  18. Earth Wind and Fire

    Earth Wind and Fire Well-Known Member
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    In my prayers brother
     
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  19. Covenanter

    Covenanter Well-Known Member
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    I've now got some photos - please don't share them publicly apart from this forum.

    [​IMG][​IMG]
    Ava-Rose with hat to protect her from Seizure falling
    [​IMG]
    X-ray before operation - note green lines showing extent of curvature
    [​IMG]
    Scar from operation to insert 2 metal rods - that must have been a very bendy cut.

    These are from a special facebook album visible to FB friends - why won't they show ????

    I'm on FB as Ian Day so you can makes friends & visit.
     
  20. JonC

    JonC Moderator
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    I think that the difficulty is that they are on FB. I am not sure, though (I'm not the most computer literate fellow out here).
     
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