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Discussion in 'Health and Wellness' started by crazycat, Sep 15, 2010.
Anyone see a Rheum doctor?
Are you on any RA medications?
Celebrex was my miracle drug but I ended up getting sensitive to that line of medication. Even motrin is rough on me. I'm also not supposed to take it anymore because of an enlarged heart. (and a c-reactive protein level that tops the charts)
But I have leftover celebrex and on great occasion, as in "it's worth the risk to save myself from stabbing myself in the eyeball to focus on something less painful" then I'll take it anyway. VERY great occasion cuz it makes me throw up blood and get nosebleeds and my stomach burns on one side, not pleasant, but definitely worth it at times. I think the sensitivity happened because a crazy doctor gave me a non-ending prescription of ketoralac and the pharmacy flipped out when they realized it, but I had been taking it for way too long first.
I don't think mine is the RA type. I forget what they called it. Don't care either, just want it gone. My muscles are what gets stiff, not my joints (except my lower spine). Heat is horrid, extremely cold temps help me cuz it takes down inflammation levels.
Prevention over medication seems key. I can take 20 mgs of Vicoden and all it does it make me not care as much so at my next appointment I'm not bothering to ask for a refill, it's pointless. Motrin works better, but I can't take it without the horrid side effects.
If you can, good luck and pray you don't get sensitive because those are the only things I found that worked. Oh, I had a dose of dilotid or however it's spelled once and it was wonderful, but I had an allergic reaction to that too.
Again, good luck. And celebrex if you can handle it. My mother-in-law takes it and says it does wonders for her too.
right now I am taking actemra once a month
celebrex 2x a day,
I was on Enbrel and Humira, after a couple of months both stopped working
my CRP has also been off the charts until recently, but that is what Actemra will do, however, I still have pain and swelling and lots of fatigue.
Actemra is a new drug (just realeased in Jan), IV infusions once a month.
I am now considered immunocompromised, not good for an ER nurse. However, I can't work now because of pain.
I'm sorry you can't do that work anymore. For a trained professional, that must be extremely frustrating.
I'm still having a really tough time accepting physical limitations. I hate them with a passion!
My husband reminded me about decadron. It was given to me via injection. It helped immensely. Apparently it's something for only rare occasions, at least in his opinion. Your doctor and situation may be different.
BTW did you use to Gina Locke (callilly)?
AKA dacatster (on FFF)
Yeppers! My maiden name is Locke, and that is also the name I write under most of the time.
I used the name Callalilly when I was on the FFF. I no longer post there.
I remarried and my last name now starts with a B.
I remember when you joined the FFF while Don was still there and you were working with the heart kids. Got one of my own...
I hope you can get some relief. Life living in pain ain't easy.
Well congrats on your marriage I remember you went through a hard time for a while. God is good isn't He. I am so glad you are doing good. I remember talking with you about your daughter, whatever happened with her. Did they figure it out? I pray she is doing better now.
Thank you. God is AWESOME. I never realized marriage could be so beautiful. Having a Christian husband is simply amazing!
Anna's still keeping us on our toes medically. She did great for a couple years but now she's having some scary stuff again. We're looking for a specialist out here and she's on a bit of nitro to help her hands.. just a tad since bp is low, but needed since the hands turn bluish black and swell, the left especially swells, and the nitro is to help avoid damage to her hands. So far all we know is that she has a left aortic arch, aberrant right subclavian artery (which as you probably know isn't bad but she was symptomatic, which was bad) and now the S2 split is very prominent, whatever that means.
I gotta go to bed...neat seeing you around again!
Just Spreading R.H.E.U.M.O.R.S. LOL!!!
I had to see a rheumatologist a few years ago for Iritis inflammation in the back of my left eye. Usually my PredForte drops would work to treat this. But Dr Kurtz said I needed prednisone.
I did not need to see the Rheumatologist for that. But when they wanted to switch me to Methatrexate, I should have known this was serious medicine.
In fact one friend I had at the time Holly told me her Dad was taking this. Be careful. He is getting sick from this. I passed the test but I did not pass the Methatrexate dosage. The started me at the smallest. I could not believe that tiny pill could last so long. It was making my heart stop a bit here and there with sudden Hives. So I immediately stopped of course and continued with prednisone.
Omnipred works for me for the eye inflammation stuff.
New meds prescribed last week: Mobic and Norflex. Started the Mobic, didn't pick up Norflex yet. The Mobic seems okay, although I have the cold/flu from Hades and don't know if it's real or from the meds as the warning on it says it can cause the same symptoms. Guess I'll wait a few more days and if it's not gone by then, will assume it's the medication, especially since nobody else in the house is sick. Weird.